April 4, 2023
Allison Miller

Becoming a caregiver for someone is always challenging, especially if it’s a loved one. Not everyone is meant to be one, and sometimes there isn’t a choice to be made because they know it needs to be done.
Of course, you want to do what’s right for your loved ones, but you’re unsure of where to start.


Honesty

 Becoming someone’s caregiver not only puts you in a vulnerable position, but ultimately it puts them in one too. You will need to sit down with them and discuss your comfort levels when it comes to assisting with day-to-day tasks. So, you’ll want to both be on the same page on comfort levels if you need to find an additional caregiver to help assist with things that you or they are uncomfortable with. You will want to discuss with your loved ones what they can do by themselves, and what they need your help with.

Education

To help someone with Parkinson’s disease, you must do research regarding the disease. You will want to be aware of what it is, what symptoms go along with it, and what the different levels of progression are and their signs. Many non-profit organizations help provide information for those diagnosed with Parkinson’s as well as information for caregivers. You will also want to consider attending your loved one’s doctor’s visits. During the visits, you’ll be able to ask questions and get further clarification. You will also be able to help your loved one by answering questions regarding current symptoms or side effects from medications or treatments.


Be Present

Being present means being aware of any changes in your loved one’s symptoms, moods, or abilities. You’ll especially want to document any of these changes if experienced after a new medication or treatment. Sometimes, a third party can help identify changes in behaviors better than the person. When noting these changes, be sure to bring it up at their next doctor's visit. That way if something needs to be adjusted, they will be able to do so.


Take Care of Yourself

Providing care for yourself will allow you to ultimately be a better caregiver for your loved one in the long run. Whatever that may entail whether it be weekly massages, quiet time, or watching a thriller… make sure you’re taking the time to care for yourself. The non-profit organizations that you used for your research also have resources on local care groups that you can join and connect with other caregivers like you.

 

Great resources:

Parkinson's Foundation
American Parkinson Disease Association
https://www.michaeljfox.org/